CHARGE Syndrome Foundation - CHARGE Accounts

Resources

CHARGE Accounts

Newsletter Archive

2013:

Spring 2013 (PDF, 1.1MB)
- Articles include:
- Social Media: Is It Really Helpful? It’s How You Use It
- Open Hands, Open Access: Deaf-Blind Intervener Learning Modules
- The Diagnosis Is Not the Person

2012:

Winter 2012 (PDF, 2.2MB)
- Articles include:
- Sucessful Adult Outcomes for Students in Transition
- Bedwetting Solution
- I Can Connect! Technology Program
Fall 2012 (PDF, 2.8MB)
- Articles include:
- Social Skills: Social Skills & Video Modeling
- Research Update
- Conference Funding Guide
Summer 2012 (PDF, 2.27MB)
- Articles include:
- iPads and the Itinerant
- Conversations and Creativity (original writings by individuals with CHARGE)
- Save the Date: 11th International CHARGE Syndrome Conference (Scottsdale, AZ)
Spring 2012 (PDF, 4.3MB)
- Articles include:
- So Many Ways to Have a Conversation - Full article on communication by Martha Majors from the Spring 2012 edition of CHARGE Accounts
- Introducing CHARGE to the Classroom
- Many Ways to Have a Conversation
- New Screening Method for CHD7

2011:

Winter 2011 (PDF, 1.47MB)

Articles include:

Potty Training from a Parent’s Perspective

CHARGE Clinics and Seminars

Texas Chargers—6th Annual Retreat

Summer/Fall 2011 (PDF, 1.75MB)
Spring 2011 (PDF, 751K)

Articles include:

Taking CHARGE of Communication

Going Back to Work: Sharing Our Experiences

2010:

Winter 2010 (PDF, 1.07 MB)

Articles include:

CHARGE Foundation Quotes 2010

Learning About CHARGE from Flies

Families’ Perceptions of Disability-Related Supports and Services: Report of a National Survey of Families Who Have Children with Deafblindness

Fall 2010 (PDF, 1.03 MB)

Articles include:

Surviving CHARGE Syndrome as a Person Who Has CHARGE

Using Augmented Input Intervention Strategies

Survival Strategies: Six Tips

The MAPs Planning Process
Summer 2010 (PDF, 1.0 MB)

Family Planning special issue
Spring 2010 (PDF, 1.04MB)
- Accessible, text-only version (76K)
Articles include:

Addressing Social Challenges of Students with CHARGE Syndrome in Middle School

Supporting Young Adults with CHARGE Syndrome Toward Successful Transition to Adult Life

Strategies for Supporting Multi-Modal Communication

2009:

Winter 2009 (PDF, 1.09MB)

Articles include:

Focus on Fundraising issue

Charge It for CHARGE: A Step-by-Step Guide

Websites for Parents of Children with CHARGE Syndrome
Summer/Fall 2009 (Double Issue: PDF, 2.9 MB)

Recap of 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

Spring 2009 (PDF, 724K)

Articles include:

3rd Annual CHARGE Retreat in Denton, TX

Topics from the CHARGE Listserv

Information on 9th International CHARGE Syndrome Conference (Bloomingdale, IL)

2008:

Winter 2008 (PDF, 547K)

Articles include:

People First Language

Finding Funds to Attend Conference
Fall 2008 (PDF, 670K)

Articles include:

Recap of Tennessee CHARGE Syndrome/Deafblind Weekend

Websites to Help with Holiday Shopping
Summer 2008 (PDF, 1270K)

Articles include:

Marion is 75, CHARGE Syndrome Foundation is 15

CHARGE Syndrome Foundation: Major Milestones

Tribute to Marion Norbury
Spring 2008 (PDF, 359K)

Articles include:

Personal Account: VitalStim Therapy

New at the Website: CHARGE Syndrome Professional Packet

2007:

Fall 2007 (PDF, 546K)

Recap of 8th International CHARGE Syndrome Conference (Costa Mesa, CA)
Summer 2007 (PDF, 171K)

Articles include:

Travel by Air

Chronic Pain in CHARGE
Spring 2007 (PDF, 131K)

Articles include:

Special Account: Pain issue

Fundraiser in a Box

2006:

Winter 2006 (PDF, 1.0 MB)

Articles include:

Independence Day: Our Story

Collaboration Between the CHARGE Syndrome Foundation and Other Organizations
Fall 2006 (PDF, 620 K)

Articles include:

International Account: News from Germany

Strategies for Successful Medical/Dental Appointments for Individuals Who Are Deaf-Blind
Summer 2006 (PDF, 604 K)

Articles include:

Adele’s Cochlear Implant Journey

Report on the Adult Services Committee
Spring 2006 (PDF, 1.1 MB)

Articles include:

Personal Accounts: Joel Saruski, Aaron Sorkin, Andrew–His 36 Hours, Laura Kenley

Intervention in Kentucky

2005:

Winter 2005 (PDF, 3.9 MB)

Articles include:

CHARGE Syndrome Fundraiser: Texas Style

Botox Use in CHARGE Syndrome Prevents Tracheotomy
Fall 2005 (PDF, 560 K)

Articles include:

Personal Account: Then and Now

Recap of 7th International CHARGE Syndrome Conference (Miami, FL)
Summer 2005 (PDF, 284 K)

Articles include:

A Review of Research Projects

Educational and Behavioral Implications of Missing Balance Sense in CHARGE Syndrome
Spring 2005 (PDF, 550 K)

Articles include:

DNA Testing for CHARGE Syndrome

Memorial Gifts Create Lasting Tribute to Central Michigan University Student

2004:

Fall 2004 (PDF, 688 K)

Articles include:

A CHARGE Gene Discovered

Suggestions for Creating Successful Transitions from School to Adulthood

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