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Resources



9th International CHARGE Syndrome Conference

 

Program Information

Conference Program Schedule

These are the scheduled presentations and presenters.  For the schedule of presentations, please visit the link above.  The presentations are placed into categories based on their content.  The code in the middle will tell you under which category the presentation falls.  The codes and categories are as follows:

ED - education, development, behavior 

MG - medical, genetic

FS - family support

NF - new family information

SE - sensory

TA - transition-to-adulthood

TX - therapies

Presentation Name

 Code        

Presenter(s)

CHARGE 101: 3 new family orientation sessions

 NF

 M. Hefner, S. Davenport, K. Blake,  R. Last
Impact of Cochlear Implants

 SE, ED

 S. Bashinski & K. Stremel
Genetic Testing

 MG

 J. Bergman, C. van Ravenswaaij-Arts, S. Lalani
Can Smell Predict Puberty?

SE 

 J. Bergman, C. van Ravenswaaij-Arts  
Sibshops (3)

 TX

 H. Byrd, T. Prochaska, C. Robbins
Anesthetia Management

 MG

 K. Blake, J. MacCuspie
Training on Infant Massage

TX 

 TREDS - TN Deaf-Blind Project 
Botox for Dysphagia

TX 

 K. Blake, J. MacCuspie
Cued Speech

 ED, FS

 D. Consacro, L. Balderson, J. Brandrup
Early Inclusion

NF 

 J. Miller, Costellos, D. Consacro
Vision Issues

SE 

 D. Brown
Talking to Your Child about CHARGE

FS 

 D. Brown, G. Deuce
Fun Chi: Tai Chi to De-stress Kids

ED

 S. Barrey Grassick 
Vocational Education and Training 

 ED, TA

 C. Giklhorn, W. Bridgeo
Balance: How Does it Work?

 SE

 M. Girardi
CHARGE Feet: Fact or Fiction

MG 

 M. Girardi
The Early History of CHARGE

MG 

 B. Hall
Person-Centered Planning

ED 

 N. Salem-Hartshorne
CHARGE Parenting: Perils or Promise

ED

 T. Hartshorne
Special Presentations by a parent with CHARGE and an author.   C. Antaya, S. Abdullah
Receptive Language Development in CHARGE

ED 

 D. Haynes
Expressive Communication in CHARGE

ED 

 E. King, L. Swanson, N. Steele, S. Thelin, J. Thelin
Growth, Growth Hormone Therapy, Neonatal & Puberty Issues

MG, TX 

 J. Kirk
Vestibular Issues and Stabilizing Visual Images

 SE

 S. Krivenki, J. Thelin
Implementation of the CHARGE Professional Packet

ED 

 M. Majors, S. Stelzer
Customized Employment

 TA

 J. McNulty, M. Fagbemi
Impact of the NICU Experience

ED, MG 

 B. Purvis
Wills and Trusts

FS

 B. Rubin
Father's Forum

FS 

 T. Hartshorne, J. Reiman
Grandparents' Meeting

 FS

 L. Stanger
Use of Manual Signs to Promote Speech

ED 

 L. Swanson
Cochlear Implants in Children with CHARGE

 SE, MG

 B. Tournis, N. Young
Certification for Professionals in Deaf-Blindness

ED 

 A. Zambone, S. Bashinski, M. Darrow-Engleman
Promoting Positive Behavior in CHARGE

ED 

 L. Denno, D. Rothbauer
Physical Education, Fitness and Sport for Children with CHARGE

ED 

 L. Lieberman 
Research Conducted at the Conference: Postural Control in Children with CHARGE   P. Haibach, L. Lieberman
Parental attitudes toward the use of VitalStim for Dysphagia

FS, MG

 N. Anderson, S. Herrick, M. Follstaedt, J. Barker, A. Hamilton

 

 

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