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A Better World for People with CHARGE Syndrome

2016 Research Grants Program

The Foundation is pleased to announce the availability of research grants of up to $50,000 for 2016-2017. 

The purpose of these grants is to promote:
a) new biomedical research into the etiology, genetic and molecular mechanisms and
treatment of CHARGE syndrome or

b) new research into clinical and medical diagnosis and treatment of CHARGE syndrome.

Both established and new investigators are encouraged to apply. Projects may be in any area of basic, clinical, translational or epidemiological research. Preference will be given to investigators who are new to CHARGE research and/or to new
projects with clear potential to lead to future funding from other agencies.

Ethan Wolfe Recreational Assistance Program 2016

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Last year, the Ethan Wolfe Recreational Assistance Program provided support to 8 people with CHARGE syndrome for a wide variety of recreational activities and equipment.  This year our applications were due by April 1st.  These applications are currently in the review process.

Stay tuned for an upcoming announcement regarding this year's successful applicants!

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Inagural EWRAP Recipients Announced

David Wolfe presented the first recipients of the Ethan Wolfe Recreational Assistance Program at conference.  You can see pictures of Mark, Hannah, Ryder, Landon, Jon, Samuel, Antonio and Cody and read about programs or equipment for which they applied and received funding through this Foundation program.

CHARGE Syndrome Database Project

The Foundation is trying to foster more CHARGE research around the world.  In addition to funding an increasing number of projects, the CHARGE Syndrome Foundation is working in partnership with Saint Louis University to create the CHARGE Syndrome Clinical Database Project (CSCDP).  To help researchers obtain data on CHARGE syndrome, please participate in this web-based questionnaire.


2015 Pilot Grant Recipients

We are very pleased to announce the recipients of the 2015 Foundation Pilot Grants: Philip Gage, PhD (University of Michigan), Faith Liebl, PhD (Southern Illinois University),  Kathrin Schmeisser, PhD (Université de Montréal) and Kai Jiao, MD, PhD (University of Alabama at Birmingham)

Read more about their projects here:

Read our PDF newsletter - CHARGE Accounts

CHARGE Syndrome FAQ 

Who, what, when, where, why...some of the most commonly asked questions about CHARGE Syndrome are answered in this FAQ document. You can also view a CHARGE Syndrome fact sheet.


The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization.  All donations are tax deductible to the extent allowed by law.  Your donations help fund research, publications, educational programs, the biennial conference and family outreach.  For more information, please contact our fundraising committee.

Foundation Fundraiser

Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!

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13th International

CHARGE Syndrome Conference

Rosen Shingle Creek hotel

The 13th International CHARGE Syndrome Conference will take place July 27-30, 2017 at the Rosen Shingle Creek Hotel in Orlando, Florida. 


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