The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Latest News:
9th International CHARGE Syndrome Conference
This year's conference, being held July 24-26th, will feature: online registration, our always-informative presentations, a new childcare company, a surprise event Saturday night and the first-ever CHARGE Conference Idol!
For more information and details, visit the Conference Information Page.
You may also proceed directly to the Online Conference Registration Headquarters.
New Parent Information:
Find out how to receive a packet of information designed to help parents of a new baby (or newly diagnosed child understand what CHARGE syndrome is, frequently asked questions, what to do now, information about the CHARGE Syndrome Foundation, and a listing of some helpful resources. View more resources.
CHARGE Syndrome: FAQ
Who, what, when, where, why...some of the most commonly asked questions about CHARGE syndrome are answered in this FAQ document.
CHARGE Syndrome Fact Sheet
Facts about CHARGE syndrome are provided in this one-page document.
CHARGE Accounts:
Browse our latest PDF newsletter in Adobe Acrobat format to read personal accounts, as well as the latest information about the 2009 conference, general foundation updates, and an upcoming calendar of events. You can also view our newsletter archives.
NEW PARENTS CLICK HERE
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The CHARGE Syndrome Foundation, Inc. is a non profit, 501(c)(3) organization and your donations are fully tax deductible. Your donations will also go toward funding research programs, publications, and supporting the biennial conference. For more information, please contact our fundraising committee.
How To Give
Make a tax-deductible contribution to the CHARGE Syndrome Foundation using PayPal or a major credit card. Note that you do not need a Paypal account to make a donation.
If you prefer to mail your contribution, use this form.
ASL Sign for
CHARGE Syndrome
Both hands are at the shoulders in the letter "C." Hands move out and away forcefully, closing into the letter "S."
Learn the story behind the sign.



