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Why Do Fundraising?

The CHARGE Syndrome Foundation is 100% dependent on the support we receive from families, friends, and supporters. Without fundraising, our conferences, newsletters, educational materials, webinars, outreach programs, and support of research simply would not exist.


Putting the FUN in FUNdraising!

It’s been on your to-do list for months now: “Organize a fundraiser for the CHARGE Syndrome Foundation.” Your intentions are good, but you have no idea what to do or where to start.

For the past several years, friends of the Foundation have come up with many different and creative ways to help raise money for the Foundation. Some techniques are more traditional, while others are less mainstream. Either way, there is something for everyone.

Here are just a few examples of what our supporters have done.

Fundraising Photo 1


Do you enjoy getting together with family and friends? Do you like to entertain? Then consider turning your next party into a fundraiser, like the Lee and Brandrup families did.

Ray & Lynn Lee – “Hula Day” Birthday Party

Jay & Julie Brandrup – “It All Adds Up” Birthday Party

Brownie Shott – “Fundraiser in a Box” Pizza Party

Lisa Weir – Birthday “Fundraiser in a Box”


Run/Walk Events:

Organizing a 5K run/walk is a great way to involve family, friends, and others in a fun, fitness-oriented activity. 

Several families hold annual run/walk events to raise money for the Foundation.

Fundraising Photo 2 

  MacKenzie Bola – Bola Walk

  Sandy Kurby – Joshua Kurby Charge for CHARGE 5K

  Corki Roth – Take CHARGE for Alivia 5K Walk-a-thon

  Kristen Matthew – Tyler Trot 5K Walk and Run






Fundraising Photo 5

Sporting Events:

Is golf your thing? Hockey? Bowling? Turn your favorite pastime into a profitable fundraiser.

Klinghofer Family – Bean Bag Toss

Crystal Masionis – Bowling for CHARGE

Catherine Kouzmanoff – CHARGE’d Up for Golf

Daniel Wolfe – Chuck-a-Puck for CHARGE

Josh Sirota – Skate for CHARGE

École Millidgeville North Stars – Stars for CHARGE Cheerleading Competition

Yard Sales:

Have you been meaning to clean out your closets but never get around to it? Is your family threatening to nominate you for an episode of “Hoarders”? Pull all that old stuff together and have a yard sale for CHARGE.

Allie Jones – Yard Sale for CHARGE

Tracy Roth – Garage Sale

Illinois Families Yard Sale

 Fundraising Photo 3

Other Unique Ideas:

Here are some other successful fundraising events that members have tried. Use your imagination, and remember to have FUN!

Bill & Deanna Steinhauser – Christmas Trees for CHARGE

The Renaissance Companies ­– Employee Jeans Day

Minnie Lambert – The Flat Charlie Project

Sunshine Elementary School, Springfield, MO – The Hearts Project (poster)

Sharon & John Chatham – Karaoke Fundraiser

Molly Roberts – Vendor Extravaganza

Ben Roundtree - 10 Anniversary Concert



Traditional Methods:

If a more conventional method appeals to you, we have fundraising tools available so you do not need to reinvent the wheel.


Fundraising Photo 4

Taking the First Step

A successful fundraiser starts with good planning. If you have a fundraising idea that you would like to bounce off someone, please contact our fundraising committee chairperson, David Wolfe, at david@chargesyndrome.org.


Sharing Your Success

We would love to hear about any and all fundraising events for the Foundation, big or small. Please let us know about  your event by emailing our communications committee lisa@chargesyndrome.org to share your story.