The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Latest News:
"It Can Be Done" -
CSF Board Meeting
November 13-14, 2009
This past weekend, the Board of Directors met for one of its two yearly face to face meetings. Embracing the theme of "It Can Be Done," the Board was not only planning for the 2011 Orlando conference but dreaming big about what we want to accomplish as a Foundation. Many new exciting initiatives have been planned, such as the new policy that no individual with CHARGE syndrome will be charged a registration fee at conference. For more information about the rest of the board meeting and other upcoming plans, look for your new issue of CHARGE Accounts, which is due out in early December.
New Parent Information:
Find out how to receive a packet of information designed to help parents of a new baby (or newly diagnosed child understand what CHARGE syndrome is, frequently asked questions, what to do now, information about the CHARGE Syndrome Foundation, and a listing of some helpful resources. View more resources.
CHARGE Syndrome: FAQ
Who, what, when, where, why...some of the most commonly asked questions about CHARGE syndrome are answered in this FAQ document.
CHARGE Syndrome Fact Sheet
Facts about CHARGE syndrome are provided in this one-page document.
NEW PARENTS
Foundation Fundraiser
Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!
The CHARGE Syndrome Foundation, Inc. is a non profit, 501(c)(3) organization and your donations are fully tax deductible. Your donations will also go toward funding research programs, publications, and supporting the biennial conference. For more information, please contact our fundraising committee.
NEW CHARGE Syndrome Book Available to Preorder!
Click on the book to visit Plural Publishing, where you can preorder the new book on CHARGE Syndrome written by the leading experts in the field. All preorders save 20% off the cost.
ASL Sign for
CHARGE Syndrome

Both hands are at the shoulders in the letter "C." Hands move out and away forcefully, closing into the letter "S."
Learn the story behind the sign.





