The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.
Latest News:
Job Opportunity:
CHARGE Syndrome Foundation seeks Director of Outreach
The CHARGE Syndrome Foundation is pleased to announce that we are in the process of interviewing for a part-time Director of Outreach. The Director of Outreach will assist the Foundation in communicating with our members and with other organizations serving individuals with sensory impairments and developmental disabilities.
The closing date is September 15, 2010. To learn more about the position or to apply, please visit the Director of Outreach Job Posting.
New Parent Information:
Find out how to receive a packet of information designed to help parents of a new baby (or newly diagnosed child) understand what CHARGE syndrome is, frequently asked questions, what to do now, information about the CHARGE Syndrome Foundation, and a listing of some helpful resources. View more resources.
CHARGE Syndrome: FAQ
Who, what, when, where, why...some of the most commonly asked questions about CHARGE syndrome are answered in this FAQ document.
CHARGE Syndrome Fact Sheet
Facts about CHARGE syndrome are provided in this one-page document.
The CHARGE Syndrome Foundation, Inc. is a non profit, 501(c)(3) organization and your donations are fully tax deductible. Your donations will also go toward funding research programs, publications, and supporting the biennial conference. For more information, please contact our fundraising committee.
10th International CHARGE Syndrome Conference
Foundation Fundraiser
Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!
NEW CHARGE Syndrome Book Available for pre-order -
coming in October 2010 !
Click on the book to visit Plural Publishing, where you can preorder the new book on CHARGE Syndrome written by the leading experts in the field.






