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CHARGE Research

Clinical Database Project


How To Give

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Make a tax-deductible contribution to the CHARGE Syndrome Foundation using a major credit card.

If you prefer to mail your contribution, use this form.



A Better World for People with CHARGE Syndrome

CHARGE Syndrome Research

The Foundation is trying to foster more CHARGE research around the world.  In addition to funding an increasing number of projects, the CHARGE Syndrome Foundation is working in partnership with Saint Louis University to create the CHARGE Syndrome Clinical Database Project (CSCDP).  To help researchers obtain data on CHARGE syndrome, please participate in this web-based questionnaire.

Conference Program Information

The 12th International CHARGE Syndrome Conference is taking place July 30 - August 2, 2015 in Chicago, Illinois. With more than 70+ breakout sessions, poster presentations and demonstrations, the conference offers a broad range of topics for participants of all experience levels. Program information highlights are now available so attendees can begin to think about the sessions that will be of interest to them. 

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Ethan Wolfe Recreational Assistance Program

The Foundation is pleased to announce the Ethan Wolfe Recreational Assistance Program.  Thanks to a generous gift from the Wolfe family and friends, members of the Foundation will have the opportunity to purchase recreational equipment or participate in recreational programs. 

Conference Gear Available for Order

This year we are offering preorders for conference gear with pick-up at conference (or to be shipped after conference - US only arriving approximately July 15).  Check out the T-shirts, long sleeve T-shirts, sweatshirts, polo shirts and hats and make your order between now and June 30 as there will be limited stock at the conference for purchase. 


2015 Pilot Grant Recipients

We are very pleased to announce the recipients of the 2015 Foundation Pilot Grants: Philip Gage, PhD (University of Michigan), Faith Liebl, PhD (Southern Illinois University),  Kathrin Schmeisser, PhD (Université de Montréal) and Kai Jiao, MD, PhD (University of Alabama at Birmingham)

Read more about their projects here:

Read our PDF newsletter - CHARGE Accounts

CHARGE Syndrome FAQ 

Who, what, when, where, why...some of the most commonly asked questions about CHARGE Syndrome are answered in this FAQ document. You can also view a CHARGE Syndrome fact sheet.


The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization.  All donations are tax deductible to the extent allowed by law.  Your donations help fund research, publications, educational programs, the biennial conference and family outreach.  For more information, please contact our fundraising committee.

Foundation Fundraiser

Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!

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International CHARGE
Syndrome Conference

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The 12th International CHARGE Syndrome will take place on July 30-Aug. 2, 2015 in Chicago.  For more information, visit our 2015 conference page.

See you in Chicago!



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