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CHARGE Research

Clinical Database Project


How To Give

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Make a tax-deductible contribution to the CHARGE Syndrome Foundation using a major credit card.

If you prefer to mail your contribution, use this form.



A Better World for People with CHARGE Syndrome

CHARGE Syndrome Research

The Foundation is trying to foster more CHARGE research around the world.  In addition to funding an increasing number of projects, the CHARGE Syndrome Foundation is working in partnership with Saint Louis University to create the CHARGE Syndrome Clinical Database Project (CSCDP).  To help researchers obtain data on CHARGE syndrome, please participate in this web-based questionnaire.

Conference Program Information

The 12th International CHARGE Syndrome Conference is taking place July 30 - August 2, 2015 in Chicago, Illinois. With more than 70+ breakout sessions, poster presentations and demonstrations, the conference offers a broad range of topics for participants of all experience levels. Program information highlights are now available so attendees can begin to think about the sessions that will be of interest to them. 

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Ethan Wolfe Recreational Assistance Program

The Foundation is pleased to announce the Ethan Wolfe Recreational Assistance Program.  Thanks to a generous gift from the Wolfe family and friends, members of the Foundation will have the opportunity to purchase recreational equipment or participate in recreational programs. 

2015 Silent Auction

One of the fun conference traditions is our Saturday evening fundraiser. For next year's conference, we are looking for donations of items and for assistance with soliciting donated items. Help make our silent auction a huge success.  Check the link for more info on how you can help!



Sponsors Exhibitors and Advertisers

There are many sponsorship, exhibitor and advertising opportunities available for the 2015 conference, taking place next summer in Chicago.  Please visit our conference page to learn more and also to read about our new sponsor & advertsing referral incentive program.

Read our PDF newsletter - CHARGE Accounts

CHARGE Syndrome FAQ 

Who, what, when, where, why...some of the most commonly asked questions about CHARGE Syndrome are answered in this FAQ document. You can also view a CHARGE Syndrome fact sheet.


The CHARGE Syndrome Foundation is a 501(c)(3) charitable organization.  All donations are tax deductible to the extent allowed by law.  Your donations help fund research, publications, educational programs, the biennial conference and family outreach.  For more information, please contact our fundraising committee.

Foundation Fundraiser

Learn more about our special Charge It for CHARGE Fundraiser. You can donate or become a fundraiser to help!

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International CHARGE
Syndrome Conference

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The 12th International CHARGE Syndrome will take place on July 30-Aug. 2, 2015 in Chicago.  For more information, visit our 2015 conference page.

See you in Chicago!



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