A better world for people with CHARGE syndrome.

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education and research.

Fundraiser Spotlight

Young man poses with trophy

The Kinetic Cup is a one-of-a-kind, quirky, annual whiffle ball rooftop golf tournament that is hosted by Jay Brandrup, whose daughter has CHARGE syndrome, and his company, Kinetic, in Birmingham, Alabama. The event is open to all friends of Kinetic, who attempt to log a qualifying score throughout the year. The winner hoists the Cup in a culminating shootout every October and 100% of all sponsorships and donations go to the CHARGE Syndrome Foundation.

The 10th Annual Kinetic Rooftop Shootout delivered big time! 

Read the Story

Program Spotlight

Peyton and her family make multiple trips from Pennsylvania to Cincinnati for Peyton’s medical needs. They have been lucky to get support from Angel flights and Ronald McDonald house, but sometimes things do not go as planned. They have had to find alternate accommodations, flights have been delayed, and they have to extend their stays. Our Medical Travel Assistance Program has helped with those unexpected expenses.

Read Peyton’s Story